We want to stand up and fight this disease and do what we can to help find a cure. We are so thankful to see the many people rally around us to support us in our efforts and be part of what we are doing. Often we hear people ask us how they can help. Here are some great ways you can get involved:
How can you help? Join our team...
Walk in GREAT STRIDESEvery year, Leah's Front Line participates in the GREAT STRIDES walk. GREAT STRIDES is a simple and fun way to help us raise awareness and funds for cystic fibrosis. It is a fundraising walk to support the Cystic Fibrosis Foundation.
Follow these simple steps:
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Support our Efforts - Give a Charitable Donation
The CFF is the major player in developing new treatments for CF as well as funding research in developing a cure. Last year, a new drug, Kalydeco, was released to market that targets the defective protein in CF. Although this drug targets a different gene mutation than Leah has, we are excited and hopeful to see these amazing breakthrough results. They are currently in phase 3 trial studies using Kalydeco in combination with another drug that will target the most common mutation of CF. We eagerly anticipate and hope for similar positive results from these studies.
When we first started fundraising for cystic fibrosis, we were surprised to find out that the CFF receives no governmental funding as too few people are affected by the disease. So all the money that supports this valuable research in finding a cure comes through fundraising efforts like this. Please consider giving what you can to support this worthy effort. We can't do this without you!
When we first started fundraising for cystic fibrosis, we were surprised to find out that the CFF receives no governmental funding as too few people are affected by the disease. So all the money that supports this valuable research in finding a cure comes through fundraising efforts like this. Please consider giving what you can to support this worthy effort. We can't do this without you!
Stay Connected
- FACEBOOK PAGE
A super easy way to stay connected with us is through our Leah's Front Line Facebook page. This is a great way to stay up to date on how Leah is doing and what our team is up to. Please "Like" Leah's Front Line on Facebook and share our page with your friends!!
Click on the button to check us out!!
- OUR BLOG
Another great way to keep up to date with us is to follow our blog. This is a place we want to share our hopes and dreams, our good times and bad times, as we are on our everyday journey with Leah's disease. You can easily subscribe by clicking on the RSS Feed button.
Partner with us in Prayer
We know we serve a good and powerful God. We know that our sweet Leah belongs to God. We know that God has a plan and a purpose for Leah's life. Earnestly, we pray for God to be glorified in and through her life. We also hope and long for a cure to be found for this disease.
Please join us in praying:
If you would like to receive regular prayer updates on Leah's health and the development of new CF research and therapies, please contact us.
Please join us in praying:
- For Leah's life to bring glory to God.
- For Leah's everyday health & protection from infection.
- For a cure to be found for cystic fibrosis.
If you would like to receive regular prayer updates on Leah's health and the development of new CF research and therapies, please contact us.
