We want to stand up and fight this disease and do what we can to help find a cure. We are so thankful to see the many people rally around us to support us in our efforts and be part of what we are doing. Often we hear people ask us how they can help. Here are some great ways you can get involved:
How can you help? Join our team...
Walk in GREAT STRIDESGREAT STRIDES is a simple and fun way to help us raise awareness and funds for cystic fibrosis. It is a fundraising walk to support the Cystic Fibrosis Foundation.
Follow these simple steps:
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Support our Efforts - Give a Charitable Donation
The CFF is the major player in developing new treatments for CF as well as funding research in developing a cure. Last year, a new drug, Kalydeco, was released to market that targets the defective protein in CF. Although this drug targets a different gene mutation than Leah has, we are excited and hopeful to see these amazing breakthrough results. They are currently in phase 3 trial studies using Kalydeco in combination with another drug that will target the most common mutation of CF. We eagerly anticipate and hope for similar positive results from these studies.
When we first started fundraising for cystic fibrosis, we were surprised to find out that the CFF receives no governmental funding as too few people are affected by the disease. So all the money that supports this valuable research in finding a cure comes through fundraising efforts like this. Please consider giving what you can to support this worthy effort. We can't do this without you!
When we first started fundraising for cystic fibrosis, we were surprised to find out that the CFF receives no governmental funding as too few people are affected by the disease. So all the money that supports this valuable research in finding a cure comes through fundraising efforts like this. Please consider giving what you can to support this worthy effort. We can't do this without you!
Volunteer your timeThroughout the year, we are in need of people willing to volunteer their time to help with different fundraising events/opportunities.
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Attend team events/Help organize local fundraiser
Support our efforts by coming out and being part of our different fundraising events. Or consider helping us raise money by organizing a fundraiser in your workplace or neighborhood.
Stay Connected
- FACEBOOK PAGE
A super easy way to stay connected with us is through our Leah's Front Line Facebook page. This is a great way to stay up to date on how Leah is doing and what our team is up to. Please "Like" Leah's Front Line on Facebook and share our page with your friends!!
Click on the button to check us out!!
- OUR BLOG
Another great way to keep up to date with us is to follow our blog. This is a place we want to share our hopes and dreams, our good times and bad times, as we are on our everyday journey with Leah's disease. You can easily subscribe by clicking on the RSS Feed button.
Corporate Sponsors
We are looking for Corporate Sponsors to partner with us and the CFF. We would like to build more partnerships, especially with local businesses. Please consider getting involved by becoming one of the following:
Thank you for considering or asking your company to consider sponsoring our team for the GREAT STRIDES walk.
- Corporate Sponsor Leader - If you own a company and would like to partner with us as a Corporate Sponsor, please contact us here so we can explain the options that we have available (i.e., direct sponsorship, in-kind donations, monetary donations, etc.).
- Corporate Sponsor Champion - If you work for a company and would be willing to ask them to consider becoming a Corporate Sponsor, please contact us here so we can provide you with materials to use that will explain the options available for corporate sponsorship.
Thank you for considering or asking your company to consider sponsoring our team for the GREAT STRIDES walk.
Partner with us in Prayer
We know we serve a good and powerful God. We know that our sweet Leah belongs to God. We know that God has a plan and a purpose for Leah's life. Earnestly, we pray for God to be glorified in and through her life. We also hope and long for a cure to be found for this disease.
Please join us in praying:
If you would like to receive regular prayer updates on Leah's health and the development of new CF research and therapies, please contact us.
Please join us in praying:
- For a cure to be found for cystic fibrosis.
- For Leah's everyday health & protection from infection.
- For Leah's life to bring glory to God.
If you would like to receive regular prayer updates on Leah's health and the development of new CF research and therapies, please contact us.
