 Great StridesWe had a rainy, but good day walking in Great Strides this year! Thanks to all who supported our efforts by walking and donating! It's not too late to donate! Click here to make a donation. Thanks! We did our walk at Hammel Woods, the walk site from the very first Great Strides our team walked in! Such sweet memories... Check out this video from ten years ago for a little Throwback Thursday: As Leah is getting ready to graduate from eighth grade, it was so fitting that we had two Troy teachers walking with us this year! One from her first year at Troy (Kindergarten teacher Mrs. Buell) and one from her last year at Troy (8th grade PE teacher Mrs. Wasag)!  Over the years, we have had so many Troy teachers and staff be part of our team in different ways, from walking with us at Great Strides, making donations, hosting movie nights, and the wackiest of all: Tape Mr. Munch to the Wall! All of these done in honor of Leah to help find a cure for cystic fibrosis!  Troy has been a great experience for Leah! Between all her wonderful teachers and the amazing staff and nurses, she has been well taken care of! Thank you teachers and staff at Troy! We appreciate all you've done for Leah and our family! Health UpdateThankfully, Leah has been doing well this year healthwise. She has had no hospitalizations, no sickness, no exacerbations, no COVID... a healthy year! Praise God!
Another HUGE update - Leah has not cultured the NTM infection since Jan 2020! We don't know if that means the infection is gone, but it is promising! And it appears that the infection is not active right now, so we will take it! Praise God! Leah started on Trikafta (the latest modulator medication targeting the underlying cause of CF) in December 2019! Notice the start of Trikafta and the possible conversion of NTM... connected? Possibly. Either way, we are so thankful for these new medications and treatments that are helping Leah as she battles her CF! We have so much to be thankful for! Including all of you!
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 Virtual Great Strides ~ Saturday, May 15  THIS SATURDAY is the Great Strides (Virtual) Walk! While this year will look different than the past, our mission is still the same: Raise money to help find a cure for Leah and all those with cystic fibrosis!  How can you be part of Great Strides this year?
 We are grateful to have you as part of our community. As Leah's Front Line, we stand next to Leah as she battles CF everyday. Please consider joining us!  |
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We are truly blessed. We want this to be a place we can share updates on how Leah is doing with her CF. As well as a place to share our hopes, dreams, and prayer requests. Thank you for loving and supporting Leah as she fights everyday to add more tomorrows. SubscribeArchives
May 2021
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