Overall, Leah is doing great! Her body continues to handle the medication well. Thankfully, she has not had any significant side effects thus far. The treatments are not slowing her down at all, in fact, she seems to be doing better than when we began. Her cough is minimum, she has been fever free, her pulmonary function is a bit higher than it had been Oct-Dec, and overall she is feeling better. At her last visit with doctor, he didn't hear any crackles in her lungs!! That was super exciting to hear. Crackles in the lungs indicate infection, and we haven't had a clear sounding lung report from doctor in a long, long time.
Even though we are seeing good results clinically, her first culture taken at 4 weeks continued to test positive for the mycobacterium abscessus. So the stubborn infection is still hanging on. Her next culture will be taken this Tuesday. We are hoping and praying to see a culture conversion, which would be a negative culture not showing any of the m. abscessus growing in it.
She is receiving home bound instruction through a teacher from her school. This has been helpful in keeping her caught up with her school work while giving us time to take care of Leah's treatments, doctor visits, lab work, and tests. Plus, it has helped keep her healthy and away from all those icky sickness bugs that have been very prevalent around here lately.
Leah's friends from Awana sent this picture to cheer her on, along with a big manila envelope filled with valentines for her.
Thank You! We appreciate all the prayers and support everyone has shown Leah and our family! Thank you!