This one we saw coming... Leah had not been feeling good for a while, so we were pretty sure that we were headed for a hospital stay. Late Sunday night, Leah was admitted into the hospital for a cystic fibrosis exacerbation. We expect Leah to be hospitalized for a full two weeks to complete IV antibiotics and receive increased respiratory treatments. After looking at her x-ray and seeing the drop in her pulmonary function, doctor was glad we brought her in when we did. We are hopeful that the hospital treatment will help decrease some of the inflammation in her lungs, clear out the extra mucus, improve her lung function, and help Leah to feel better.
As you may remember, Leah has been in the continuation phase of her NTM treatment for m. abscessus. She has been on three oral antibiotics and one inhaled antibiotic since March 2017. Doctor decided to administer the three oral antibiotics as IV antibiotics while in the hospital. However, we needed to stop the inhaled antibiotic due to continued hearing loss. Up to this point, her hearing loss had not been in the language sounds. Unfortunately, her latest auditory test showed hearing loss in the lower language sounds.
While Leah continues to feel a bit crummy, she has been in pretty good spirits. Even as she does her treatments, she likes to have fun and play games. Since Respiratory treatments take a while, she has been playing games, doing card tricks, or having play-do wars with her respiratory therapist. They each create something from a given theme and then they try to guess what the other person made. It can be quite amusing.
Can you guess what movie these play-do creations represent? (Hover over picture to find out answer!)
People often wonder if Leah gets bored in the hospital... well sometimes she is bored, but her days are quite full. They want to keep her up and moving during the day. Between four respiratory treatments, IV medications, Doctor and nurse check ins, Physical Therapy, PFT (Pulmonary Function Tests) on M,W,F, Child Life bringing in games and crafts, Music therapy, and eating meals/snacks... she is quite busy. Today, she also had a visit from a magician and we got to take a quick walk outside in the sunshine.
I also picked up her school work today, so we can add that into our schedule. Thankfully, Spring Break is next week so she will only miss one week of school. That should make it easier to get her caught up on what she is missing.
We appreciate your prayers for Leah and our family. Although we have learned some helpful lessons on how to navigate hospital stays from our past experiences, that doesn't mean it is easy. And sometimes, Leah refers to the hospital as her second home :( But we are thankful for a place with great doctors, nurses, and staff that care for Leah and our family. If you want to send a note or picture to encourage Leah, you can reply in the comments or send us an email.
3/22/2018 10:17:36 pm
So sorry to hear this. Praying for Leah and your family.
3/23/2018 12:31:33 am
💕💕💕 praying for all of u! We hope this does just what it needs to so that Leah can be back to her #1 home SOON!!!!!
3/23/2018 12:44:23 am
Praying for leah and your family
3/23/2018 04:25:16 am
3/23/2018 05:44:59 am
Praying for your 5. I’m thankful for the commitment to gratitude you’ve had in every trial God has led your through. God bless you guys as you ride this wave and he draws you in to him yet again. Praying everyone says ‘Wow’! to what God will do in the upcoming week in your lives!
Dean and Ruth Woodard
3/23/2018 06:57:51 am
So very sorry to hear that Leah is hospitalized . Praying for her and for all of you as her treatments continue
3/23/2018 07:04:41 am
Praying for Leah and the family. Such a brave young lady.
The Altenbach Family
3/23/2018 07:11:30 am
We all love & are praying for you! ❤️❤️🙏🙏
Erika Keen- WBO
3/23/2018 07:32:46 am
Sending prayers and hoping the treatment go well
The Hanna Family
3/23/2018 07:34:07 am
Hi Leah! We are thinking of you here in Charleston, SC. Much love to you and your family. Feel better sweet girl!! ❤
3/23/2018 07:40:15 am
The Baier family is praying for you sweet girl! I love your play doh creations, very cool! Keep being a strong, brave kid, Leah! You got this! XO
3/23/2018 07:59:13 am
Praying for you Leah! Hope you feel better soon! Stay strong!
3/23/2018 08:02:56 am
So so sorry she has to be in the hospital. You're pictures are so cute Leah! I'm happy you are surrounded by people, and stuffed animals, who love you! You guys need anything, you call us!
3/23/2018 08:03:19 am
We are praying for our sweet friend 💜🙏. Praying all the medicine takes effect quickly!! We love you Leah 💞
3/23/2018 08:07:43 am
Love and Prayers from the Mallow Family. Pray you are able to share the gospel with the hospital staff.
3/23/2018 08:17:20 am
We are praying for you sweet girl. We're sorry you are in the hospital, but thankful that it will help you feel better!! We love you and your family!!!
3/23/2018 08:32:22 am
So sorry to hear this. We will be praying for you. Hope you feel better soon.
3/23/2018 08:37:23 am
Praying for you Leah! Get better soon! Oh and I like your Trolls sculpture!
3/23/2018 09:10:27 am
Fight like a girl, Leah! Praying you feel better soon!
3/23/2018 09:52:32 am
Wow, Leah. I think you should either teach a class or write a book. I could learn a lot from you about facing challenges! I will pray for you. Thank you for being who you are. :-)
3/23/2018 10:02:04 am
Leah we are praying that you get better soon! Keep your spirits up!
3/23/2018 10:57:55 am
3/23/2018 11:30:16 am
Feel better Leah and come back soon to WBO!
3/23/2018 11:38:40 am
We love you Leah! We’re praying for you and for your family. YOU are an amazing warrior! (Also, we think it would be super fun if you could play hide ‘n go see on your hospital floor! 😄) ❤️
3/23/2018 12:12:50 pm
Hi Leah! So glad to see your smiling face in the pictures. We miss you as always at HT. Love, hugs, and prayers to you!
3/23/2018 12:20:21 pm
Hey Leah! I miss seeing your face at Extreme! Praying for a speedy recovery. Keep fighting, brave girl! You're strong in the Lord.
3/23/2018 12:26:18 pm
So glad to see your beautiful smiling face in the pictures!! Thinking of you and sending prayers!
3/23/2018 01:05:03 pm
Praying for you❤️Keep smiling!
3/23/2018 02:04:37 pm
Praying for you, sweet Leah!! We are sorry to hear you are in the hospital, but we are so glad you are in good spirits. We bet you loved the magic show! Praying for God's healing and that you feel better soon. We love you, Nordquist Family!!❤️
3/23/2018 02:40:18 pm
Such a brave kid! I’m proud of you Leah for being such a trooper. I’m praying for you,your family and those caring for you. God Bless.
3/23/2018 03:56:43 pm
We love you Leah and are praying you home. ❤
3/23/2018 09:51:20 pm
Thinking of and praying for you, Leah! Your strength and courage through the tough times are an example to so many people. You are a beautiful girl inside and out. Feel better sweetheart <3
3/24/2018 01:17:35 am
Leah!!! We miiiisss you! I'm grateful for medical people who are helpful and also for our Jesus who is enough. I'm also so grateful for your sweet spirit and good attitude in difficult times. Please shine your Light brightly! Float on these prayers, Girl, they are many!
3/24/2018 10:24:28 am
Praying for Leah and your whole family. You all are an example to us all of perseverance and faithfulness!
3/24/2018 04:36:48 pm
Praying for you all!!
3/24/2018 07:40:38 pm
Our hearts and prayers go out to you.
3/25/2018 01:53:18 pm
Feel better soon, Leah! With love from the Linders
Peter and MaryBeth Frantzis
3/26/2018 06:20:15 pm
Leah, our prayers are headed to Jesus for you from North Syracuse! We pray that the treatments you are receiving will make you feel better quickly. We love to hear how God is keeping you encouraged, even as you need to spend time in the hospital. Your playdough creations are terrific! Keep those creative hands busy! We're praying for the rest of your family too through this time.
3/28/2018 12:43:54 pm
You can DO it Leah! Praying for you all!
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We are truly blessed. We want this to be a place we can share updates on how Leah is doing with her CF. As well as a place to share our hopes, dreams, and prayer requests. Thank you for loving and supporting Leah as she fights everyday to add more tomorrows.