Every three months, Leah has an appointment with her Cystic Fibrosis Care Center team. During these Care Center visits, she is seen by her CF doctor, nurse, nutritionist, respiratory therapist, and social worker. At her last visit on January 17, Dr. Akhter was pleased with how she was doing. He likes to say she is on cruise control. Her lungs sounded clear and she had no cough. His only concern was that her BMI percentile dropped to the 25-50%. So, he wants us to add more calories to her diet to get help her gain weight.
We were also glad to hear that her culture came back clear of bacteria. But by the time we received the results of her culture, about a week after her appointment, she had come down with a cold. This cold has been lingering and we were hopeful that it would clear up on its own. However, about a week ago, her cough began to increase and become more wet and junky. So, Leah was put on antibiotics to help clear up this infection. Thankfully, she isn't acting sick and does not have a fever. However, antibiotics often cause her stomach to get upset and disrupts her eating habits.
We are truly blessed. We want this to be a place we can share updates on how Leah is doing with her CF. As well as a place to share our hopes, dreams, and prayer requests. Thank you for loving and supporting Leah as she fights everyday to add more tomorrows.