We wanted to say a BIG thank you for all the support you have shown Leah! She has felt great love and encouragement from all the notes, videos, pictures, and visits she has received! On her hospital room door she has an encouragement sign from her CF Care Center Team. They are the best! We love them.
Leah has been taking her medications like a champ. She seems to be adjusting and handling the medication well. Her port site is still a bit sore, but is starting to heal. We expect to be discharged on Monday. We will continue her IV/oral medication regimen at home.
Leah got to go outside for a little bit this afternoon and enjoy the spring like weather while visiting with her cousins. We took a walk by the Ronald McDonald House across the street from the hospital.
Thank you so much for all your prayers! We are blessed to have so many praying for Leah and our family as she tackles this NTM infection.
We are truly blessed. We want this to be a place we can share updates on how Leah is doing with her CF. As well as a place to share our hopes, dreams, and prayer requests. Thank you for loving and supporting Leah as she fights everyday to add more tomorrows.